About Us

Welcome to CaseyBarnes.org!

img_0158_2408272774_oCaseyBarnes.org started as way to keep our out-of-town family and friends in the loop during our pregnancy. After Casey was born with many medical complications we continued to use her blog as a way to keep everyone up to date. We soon started to see other families like ours were also following our story.

In many ways Casey is a pioneer. Previously, kids as complex as her did not typically survive the extent of trauma that she experienced. As we learned many lessons (usually the hard way) we started to see many tools and resources simply did not exists.

Tim and I both have technical backgrounds and we decided to use our skills to try to make life a little easier for other families like ours. We now use this site to keep family and friends in the loop on all things Casey, but also we share on general special needs topics. We also built many features that offer tools and resources to make the day-to-day life of a special needs parent a little easier.


Home Modifications

Get and share ideas, pictures, contractors and more to help make your home more accessible for your child. A modification can be anything from adding a lock to a cabinet, labeling storage bins all the way to full remodel projects. See what other families have tried and hopefully you can use some of these ideas to make your own life a little easier.

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Product Reviews

Read and Share reviews on medical equipment and any special needs products. For parents by parents. These reviews are a great place to start before committing to a high cost medical item, even if insurance covers it. When you can only replace the item once every few years you want to be sure you get the best product for your child's needs.

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Enjoy Texas!

If you live and Texas and want to get out and about with your child, be sure to check out this tool. Other parents share their tips and opinions on different locations, activities, etc. You can find out about restrooms, parking, accessibility, friendliness of staff (inclusion), cost, hours of operation and much more. A must have tool for any active family in Texas.

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Medical Form Template

We all get the same forms at every doctor visit, hospital stay, etc. There is never enough room for your full history, all the medications, specialists, etc. Say goodbye to all the hassle with medical forms. Use this template to collect all of your information (while at home and it's handy). Print out a few copies and keep them in your go bag, or glove box. Doctors and nurses will love you for this!

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